Chordoma Foundation

Chordoma

Chordoma is a relentless bone cancer that occurs in the head and spine in people of all ages.

Our Mission

Our Mission is to rapidly develop effective treatments and ultimately a cure for chordoma, while improving the diagnosis, treatment, and quality of life for people affected by this devastating bone cancer.

Chordoma Foundation in the News

"College Student Researches Own Disease"

February 20, 2008 | read article »

"Racing to Find the Cure for His Own Cancer"

March 7, 2008 | read article »

Become a Chordoma Champion!

Share your story with us and get your own section on the site!

Chordoma Foundation: Leading The Search For A Cure

The Chordoma Foundation was started in February, 2007 by Dr. Simone Sommer, and her son Josh, after he was diagnosed with a chordoma in 2006, during his freshman year of college. Since his diagnosis, Josh has worked in an oncology lab at Duke University to find his own cure.

Featured Champion: Meet Justin...

Hi, I'm Justin from Chapel Hill, North Carolina. I'm 12 years old and was diagnosed with a clival chordoma five years ago. Since then I've had three recurrences and lots of surgery, radiation and chemotherapy. Although there have been treatments that have stopped the growth of my tumors, none have allowed me to go into remission. My family and I support the Chordoma Foundation because we think it's the best shot we've got at finding a cure.