If you or someone you care about has been diagnosed with chordoma, you’ve come to the right place. Chordoma is a rare cancer, and navigating treatment options, accessing expert care, and finding support can be challenging — especially in regions where resources are limited. This page is designed to provide patients, caregivers, and healthcare professionals in India, Indonesia, and the Philippines with reliable resources and personalized guidance.
Here, you’ll find:
Educational resources: Download our translated booklets on chordoma diagnosis and treatment for primary and recurrent tumors in Hindi, Tagalog, and Indonesian.
Access to care: Discover hospitals, doctors, and centers with experience in rare cancers in your region.
Support networks: Connect with organizations and communities dedicated to helping patients with rare cancers.
Educational resources
Understanding chordoma and navigating your treatment options can feel overwhelming, but you don’t have to do it alone. Our Expert Recommendations booklets are now available in Hindi, Indonesian, and Tagalog offering detailed information to help you at every stage of your journey.
We extend our heartfelt thanks to the dedicated reviewers who made the translations of our educational booklets possible. The Indonesian version was reviewed by Dr. Handoko Handoko (Indonesian Radiation Oncology Society, Indonesia), the Tagalog version by Dr. Jerold Justo (Medical City, Philippines), and the Hindi version by Dr. Sameer Rastogi and Tanya Gupta (All India Institute of Medical Sciences, India). Their expertise and diligence ensured that the information is accurate and accessible to patients and families in their respective regions. We are also deeply grateful to the Eli Lilly and Company Foundation for its generous support in making this initiative to expand global access to trusted chordoma resources a reality. Together, we are helping to empower patients and caregivers with knowledge and support, wherever they may be.
Expert Recommendations for the Diagnosis and Treatment of Chordoma
Learn about how chordoma is diagnosed, tests to get before treatment, what treatment you should receive based on the location of your tumor, and why it's critical to be treated by a team of doctors with chordoma expertise.
Expert Recommendations for the Treatment of Recurrent Chordoma
Learn how chordoma should be treated if it comes back after treatment.
Our Patient Navigators can help answer your questions, provide information about treatment guidelines, help you find qualified doctors, and connect you with others in the chordoma community who have been through a similar journey.
Finding the right medical team is crucial when dealing with a rare cancer like chordoma. The Chordoma Foundation is here to help you connect with hospitals, doctors, and treatment centers experienced in managing chordoma and other rare cancers in your region.
Our Doctor Directory is a vetted list of specialists worldwide who are knowledgeable in chordoma care. Whether you’re seeking advice for a new diagnosis, considering treatment options, or exploring second opinions, the Directory can guide you to the expertise you need.
If your doctor is not yet listed, we encourage you to help expand this resource for the benefit of others. Simply fill out our Doctor Information Form to recommend a doctor experienced in treating chordoma. By contributing to our Directory, you’re helping build a stronger support network for patients globally.
Radiation therapy is often the recommended treatment for patients with chordoma following surgery. For more information on radiation and different types of radiation click here.
Proton beam therapy and carbon ion therapy are the types of radiation most often recommended for chordoma because they can deliver high doses to the tumor while protecting the surrounding healthy tissues. However, there are other types of highly-focused photon radiation that are sometimes used if proton and carbon ion are not available. These types include image-guided intensity modulated radiation therapy (IG-IMRT) and stereotactic radiosurgery (SRS).
India
Apollo Proton Cancer Centre (APCC)
4/661, Dr Vikram Sarabai Instronic Estate 7th St, Dr. Vasi Estate, Phase II, Tharamani, Chennai, Tamil Nadu 600041, India
Phone: +91 73389 92222
Philippines and Indonesia
There are currently no active proton therapy centers in the Philippines or Indonesia, but advanced radiation therapy services are provided by several institutions.
For those seeking proton therapy in Southeast Asia, centers in Singapore and other nearby regions could also be relevant:
1 Biopolis Drive #B1 Amnios, Singapore 138622
Phone: +65 6708 7890
WhatsApp: +65 8399 2746
Navigating a chordoma diagnosis is challenging, but you don’t have to face it alone. There are organizations and communities in Southeast Asia and beyond dedicated to providing support, resources, and connections for patients with rare cancers like chordoma.
Chordoma Foundation Resources
Chordoma Connections: Join our online community to connect with other chordoma patients, caregivers, and survivors worldwide. Share experiences, ask questions, and find encouragement from those who truly understand (we have a group for India led by Nikhil Sethi)
India
Sachin Sarcoma Society - This group provides comprehensive support for sarcoma patients, including emotional counseling, logistical help, and financial assistance for scans and medicines. They also host educational campaigns and collaborate with researchers to spread awareness and improve treatment access. Dr. Sameer Rastogi, a sarcoma medical oncology specialist at AIIMS, New Delhi, is the driving force behind this non-profit.
SPANDAN (VCare) - A support initiative under the V Care Foundation that focuses on advocacy and improving quality of life for sarcoma patients and survivors. It emphasizes patient rights and survivorship events
Indian Cancer Society - A major NGO offering cancer awareness, treatment support, and advocacy.
Indonesia
Indonesian Cancer Foundation (Yayasan Kanker Indonesia) - Promotes cancer prevention and support services for patients.
Philippines
Philippine Cancer Society - A leading organization providing resources, education, and support for cancer patients.
Cancer Warriors Foundation - Focused on children battling cancer, including rare types.
Asia Pacific Alliance of Rare Disease Organisations (APARDO) - Collectively working to address the challenges faced by rare disease communities across the Asia-Pacific region, including India, the Philippines, and Indonesia.
Making sense of chordoma and how to deal with it can be a real challenge. Every day we speak with chordoma patients and their loved ones looking for answers to important questions. From finding the right care team to understanding treatment options to getting emotional support, there are a number of practical challenges that most everyone affected by chordoma will face at one time or another.
You can get straight answers to those questions directly from leading chordoma experts and our community members through our Expert Answers Video Series. Whether chordoma is new to you or something you have been dealing with for a while, we hope this video series will provide greater clarity about this complex disease and help you make more informed decisions.
Everyone needs help on their journey with chordoma. The Chordoma Foundation offers services and resources to support you at any stage of your journey.
We can help answer your questions, provide information about treatment guidelines, help you find qualified doctors, and connect you with others in the chordoma community.
We know chordoma is a solvable problem. How fast it gets solved depends on the contributions of every one of us affected: whether by donating, hosting a fundraiser, or participating in research. There are lots of opportunities for each of us affected by chordoma to fuel research advances that will dramatically improve treatments and outcomes.
