Educational resources

What do I need to know?

If you or someone you know has chordoma, you’ve probably found yourself asking this question. We can help answer it!

Use the links below to explore booklets, PDFs, and videos on many chordoma-related topics, to help you make informed medical decisions, get the best care possible, and stay up to date on the latest in chordoma research and treatment.

Booklets

Learn about what chordoma experts recommend for treatment, types of treatment, and ways to manage side effects in our downloadable booklets.

PDF files

Print, share, and use these PDF resources to educate others on chordoma, track your side effects, and think about questions to ask your care team.

Webinars and videos

Hear from medical experts, chordoma community members, Chordoma Foundation staff on what to expect during and after treatment, chordoma research, and much more.

Continue learning

Our website is a wealth of information that can help you learn even more about chordoma. Visit these pages to continue learning.

Understanding chordoma

The basics on chordoma, including who gets it, where it's located in the body, what types there are, and if it's genetic.

Learn more

Guide to getting the best care

Getting the right treatment is critical to a good outcome. This step-by-step guide will help you make the most informed decisions about your care.

Get the guide

Treatment guidelines

Over 60 of the world's leading chordoma experts have developed guidelines on the way chordoma should be treated.

Read the guidelines