Our Chordoma Community Day series brings connection, learning, empowerment and hope right to your doorstep.
Chordoma Community Day attendees will learn practical tools and strategies for navigating life with chordoma, hear inspiring stories from our community, and have the life-changing opportunity to make lasting friendships with others affected by chordoma who live in your area. You'll also learn about the latest in chordoma treatment and research.
We're looking forward to seeing you, expanding and deepening our community ties, and creating a space where everyone affected by chordoma feels supported and included.
Agenda
We are in the process of finalizing the agenda. Please check back to this page for updates and sign up for our newsletter to stay informed.
Session topics will include:
- Living with chordoma
- Connecting with others
- Chordoma research and treatment updates
- How to get involved
There will be a dedicated Meet & Connect session to share, ask questions, and get to know others in the chordoma community.
Confirmed speakers:
- Dr. Moain Abu Dabrh and Dr. Irina Todorov (Mayo Clinic Jacksonville) will lead sessions focused on quality of life and integrative approaches to health and well being.
- Denise Hawks, chordoma patient & survivor, will offer her powerful lived experience and patient perspective.
- Dr. Adam Holtzman (Mayo Clinic Jacksonville) will share the latest advancements in radiation therapy and what they mean for chordoma patients.
What to know
Location and time
1000 Tournament Players Club Blvd, Ponte Vedra Beach, FL 32082
Saturday, April 26, 2025
9:00am - 5:00pm EST
Parking
Complimentary self-parking is available for guests arriving on Saturday, April 26. Overnight self-parking is $22 per day, and valet parking is $35 per day.
Lodging
We have reserved a block of rooms at the Sawgrass Marriott at a discounted rate of $299 per night (plus applicable taxes and fees). Click here to book this rate by March 25.
For additional accommodations, the Hilton Garden Inn Jacksonville Ponte Vedra Sawgrass is located just 0.2 miles from the event.