In 2021, we hosted a Virtual Chordoma Community Conference (CCC) Series of five webinars about some of the most common quality of life challenges you face.
Responses to our Chordoma Survivorship Survey show that, depending on tumor location, as many as 57 percent of chordoma patients and survivors experience chronic pain. But you don’t have to accept pain as a normal part of having chordoma. Watch this 60-minute webinar featuring Maryam Jowza, MD, Staci Martin Peron, PhD, and Sasha Knowlton, MD, to learn more about the type of pain you might be experiencing, where to get help dealing with it, and how the Chordoma Foundation can support you.
Featured speakers
Staci Martin Peron, PhD
Clinical and Training Director
Health Psychology and Neurobehavioral Research Program
Pediatric Oncology Branch
National Cancer Institute
Maryam Jowza, MD
Assistant Professor
Department of Anesthesiology
Division of Pain Medicine
University of North Carolina Health
Sasha Knowlton, MD
Assistant Director of Cancer Rehabilitation
Department of Physical Medicine and Rehabilitation
Spaulding Rehabilitation Network and Harvard Medical School
Watch webinar recording
Information provided by the panelists is not patient-specific and is not medical advice. Please follow up with your doctor to discuss the information you learn from this webinar.