MAC Fund
Created in memory of Mac Sinise, this fund supports our efforts to initiate promising new clinical trials, and help patients access those trials.
Support a named fund
When you contribute to a named fund, you're supporting the efforts of individuals and families who have made chordoma research and support their personal mission, creating a ripple effect of hope and progress throughout our community. These dedicated funds are powerful catalysts for change, advancing critical research or providing vital resources and support to patients and families navigating their chordoma journey.
Establishing a named fund begins with a foundational gift of $25,000+, followed by annual contributions of $15,000+, which can come from your own giving, the support of your network, or both. To learn more, contact our Head of Philanthropy, Kenny Brighton, via email or phone (954-803-1025).
We're deeply grateful to those who create and contribute to named funds.
V is for Victory Fund
Victoria's ongoing battle with chordoma inspired her family to help other patients gain access to promising treatments regardless of their financial situation.
Sloane Swanton Research Fund
Established in memory of Sloane, who succumbed to chordoma when she was only 18 months old, this fund is helping us find cures for pediatric chordoma.
John Blume Memorial Fund
This fund, established in memory of chordoma patient John Blume, supports our multi-pronged approach to bring better therapies to patients as quickly as possible.
Support a fundraiser
Our heartfelt thanks go out to those who fundraise on our behalf, and the countless generous donors who support us through these efforts. The fundraisers shown here represent just a few of the many individuals who are inspiring their networks to help us create a better future for all those affected by chordoma. To find another individual's fundraising page, click here.
Creating your own fundraising page is a meaningful and easy way to share your story, rally your community, and make an outsized impact on our mission. You can set any fundraising goal that feels right and choose whether to make it a one-time campaign or an ongoing effort. If you'd like to create a fundraising page, we'll guide you through the simple process of setting up and sharing your campaign. To get started, contact our Development and Engagement Officer, Dani Pike, via email or phone (919-897-5122).
One in a Million Campaign
Chordoma survivor Mick Potempa and his wife, Noreen, host an annual event or email campaign inviting their friends and family to support our mission.
Team Chordoma
Chordoma survivor Steven Mandel’s energetic race tradition brings chordoma patients and their friends and family together to run, walk, and cheer our way to better outcomes.
Chloe's Birthday Bash
Drinks, dancing, and dogs! The Finley family fundraises via a creative annual birthday bash for their pup, Chloe.
Pub Crawl for Cameron
This spirited tradition in memory of Cameron Riccomini is moving the needle for pediatric chordoma research.
Start a named fund or fundraiser
Supporting the Chordoma Foundation through a named fund or personal fundraising page enables us to work with ever-greater urgency toward better outcomes for chordoma patients.