The following is a list of questions that patients and caregivers often have about chordoma, its treatment, finding support and resources, and getting involved.
If you have any questions as you read through this information, please reach out to a Chordoma Foundation Patient Navigator who will gladly answer your questions one-on-one.
Click on the arrow next to each question to view the answer.
These educational resources are a wealth of information that can help you learn even more about chordoma.
The basics on chordoma, including who gets it, where it's located in the body, what types there are, and if it's genetic.
Chordoma Foundation Patient Navigators provide personalized information and support to anyone affected by chordoma, anywhere in the world, at any stage of their journey. Your Patient Navigator will use their extensive knowledge of chordoma to help answer your questions, provide information about treatment guidelines, help you find qualified doctors, talk with you about side effects, and connect you with others in the chordoma community who have been through a similar journey.
