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Patient Navigation Service
Survivorship Care Plan Request form
Survivorship care plan request form
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Please fill out the form below. This will provide your Patient Navigator with important details about your or your loved one’s chordoma journey and help identify current quality of life and survivorship needs. The information submitted in this form will be used to create a personalized survivorship care plan for the patient.
Your contact information
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Patient information
So that we can best assist you, please tell us more about yourself and your journey with chordoma.
City
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Date of birth
Gender
Please select...
Female
Male
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Prefer to self-describe
Self-description
Date of diagnosis (estimate if needed)
Where is or was your tumor located?
Clival (skull base)
Upper cervical (C1-C2)
Lower cervical (C3-C7)
Thoracic
Lumbar
Upper sacral (S1-S3)
Lower sacral (S4 and below, including coccyx)
Which of the following best describes your chordoma right now:
I have or had a local primary tumor, but no recurrence and no metastasis
My primary tumor has been treated and has recurred again in the same area
My tumor has spread to other locations on the spine or other parts of the body, but can still be treated with surgery or radiation
I have tumor(s) that can no longer be treated by surgery or radiation
Do you have:
Please select...
Local disease
Metastatic disease
Where has the tumor spread? (Select all that apply)
Other locations on spine
Other bones
Lung(s)
Liver
Skin
Soft tissue
Other areas
What treatments have you received?
Surgery
Radiation
Drug therapy
Clinical trial
Please tell us more about which drug therapy or clinical trial, and your outcome.
Please share any other details about yourself or your treatment that you'd like us to know (dates of treatment, outcome, where treatments were received, etc.)
Patient's information
So that we can best assist you, please tell us about your loved one's journey with chordoma.
All questions in this section refer to the patient unless otherwise noted.
Patient's First Name
Patient's Last Name
City
Knowing their location will help us provide the patient with more tailored resources.
Country
Please select...
Armed Forces Americas
Andorra
United Arab Emirates
Afghanistan
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Anguilla
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Armenia
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Angola
Armed Forces Pacific
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Argentina
American Samoa
Austria
Australia
Aruba
Aland Islands
Azerbaijan
Bosnia and Herzegovina
Barbados
Bangladesh
Belgium
Burkina Faso
Bulgaria
Bahrain
Burundi
Benin
Saint Barthélemy
Bermuda
Brunei Darussalam
Bolivia, Plurinational State of
Bonaire, Sint Eustatius and Saba
Brazil
Bahamas
Bhutan
Bouvet Island
Botswana
Belarus
Belize
Canada
Cocos (Keeling) Islands
Congo, the Democratic Republic of the
Central African Republic
Congo
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Cook Islands
Chile
Cameroon
China
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Costa Rica
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Christmas Island
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Denmark
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Dominican Republic
Algeria
Ecuador
Estonia
Egypt
Western Sahara
Eritrea
Spain
Ethiopia
Finland
Fiji
Falkland Islands (Malvinas)
Faroe Islands
France
Gabon
United Kingdom
Grenada
Georgia
French Guiana
Guernsey
Ghana
Gibraltar
Greenland
Gambia
Guinea
Guadeloupe
Equatorial Guinea
Greece
South Georgia and the South Sandwich Islands
Guatemala
Guam
Guinea-Bissau
Guyana
Hong Kong
Heard Island and McDonald Islands
Honduras
Croatia
Haiti
Hungary
Indonesia
Ireland
Israel
Isle of Man
India
British Indian Ocean Territory
Iraq
Iran, Islamic Republic of
Iceland
Italy
Jersey
Jamaica
Jordan
Japan
Kenya
Kyrgyzstan
Cambodia
Kiribati
Comoros
Saint Kitts and Nevis
Korea, Democratic People's Republic of
Korea, Republic of
Kuwait
Cayman Islands
Kazakhstan
Lao People's Democratic Republic
Lebanon
Saint Lucia
Liechtenstein
Sri Lanka
Liberia
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Montenegro
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Martinique
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Montserrat
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Maldives
Malawi
Mexico
Malaysia
Mozambique
Namibia
New Caledonia
Niger
Norfolk Island
Nigeria
Nicaragua
Netherlands
Norway
Nepal
Nauru
Niue
New Zealand
Oman
Panama
Peru
French Polynesia
Papua New Guinea
Philippines
Pakistan
Poland
Saint Pierre and Miquelon
Pitcairn
Palestine
Portugal
Palau
Paraguay
Qatar
Reunion
Romania
Serbia
Russian Federation
Rwanda
Saudi Arabia
Solomon Islands
Seychelles
Sudan
Sweden
Singapore
Saint Helena, Ascension and Tristan da Cunha
Slovenia
Svalbard and Jan Mayen
Slovakia
Sierra Leone
San Marino
Senegal
Somalia
Suriname
South Sudan
Sao Tome and Principe
El Salvador
Sint Maarten (Dutch part)
Syrian Arab Republic
Swaziland
Turks and Caicos Islands
Chad
French Southern Territories
Togo
Thailand
Tajikistan
Tokelau
Timor-Leste
Turkmenistan
Tunisia
Tonga
Turkey
Trinidad and Tobago
Tuvalu
Taiwan
Tanzania, United Republic of
Ukraine
Uganda
United States Minor Outlying Islands
United States
Uruguay
Uzbekistan
Holy See (Vatican City State)
Saint Vincent and the Grenadines
Venezuela, Bolivarian Republic of
Virgin Islands, British
Viet Nam
Vanuatu
Wallis and Futuna
Samoa
Yemen
Mayotte
South Africa
Zambia
Zimbabwe
State (Australia)
Please select...
Australian Capital Territory
New South Wales
Northern Territory
Queensland
South Australia
Tasmania
Victoria
Western Australia
Federative Unit (Brazil)
Please select...
Acre
Alagoas
Amapa
Amazonas
Bahia
Ceara
Distrito Federal
Espirito Santo
Goias
Maranhao
Mato Grosso
Mato Grosso do Sul
Minas Gerais
Para
Paraiba
Parana
Pernambuco
Piaui
Rio de Janeiro
Rio Grande do Norte
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Rondonia
Roraima
Santa Catarina
Sao Paulo
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Tocantins
Province (Canada)
Please select...
Alberta
British Columbia
Manitoba
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Ontario
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Yukon Territories
Province (China)
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Anhui
Beijing
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Gansu
Guangdong
Guangxi
Guizhou
Hainan
Hebei
Heilongjiang
Henan
Hong Kong
Hubei
Hunan
Jiangsu
Jiangxi
Jilin
Liaoning
Macao
Nei Mongol
Ningxia
Qinghai
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Xinjiang
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Yunnan
Zhejiang
County (Ireland)
Please select...
Carlow
Cavan
Clare
Cork
Donegal
Dublin
Galway
Kerry
Kildare
Kilkenny
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Leitrim
Limerick
Longford
Louth
Mayo
Meath
Monaghan
Offaly
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Tipperary
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Westmeath
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Wicklow
State or Union Territory (India)
Please select...
Andaman and Nicobar Islands
Andhra Pradesh
Arunachal Pradesh
Assam
Bihar
Chandigarh
Chhattisgarh
Dadra and Nagar Haveli
Daman and Diu
Delhi
Goa
Gujarat
Haryana
Himachal Pradesh
Jammu and Kashmir
Jharkhand
Karnataka
Kerala
Lakshadweep
Madhya Pradesh
Maharashtra
Manipur
Meghalaya
Mizoram
Nagaland
Odisha
Puducherry
Punjab
Rajasthan
Sikkim
Tamil Nadu
Tripura
Uttarakhand
Uttar Pradesh
West Bengal
Province (Italy)
Please select...
Agrigento
Alessandria
Ancona
Aosta
Arezzo
Ascoli Piceno
Asti
Avellino
Bari
Barletta-Andria-Trani
Belluno
Benevento
Bergamo
Biella
Bologna
Bolzano
Brescia
Brindisi
Cagliari
Caltanissetta
Campobasso
Carbonia-Iglesias
Caserta
Catania
Catanzaro
Chieti
Como
Cosenza
Cremona
Crotone
Cuneo
Enna
Fermo
Ferrara
Florence
Foggia
Forlì-Cesena
Frosinone
Genoa
Gorizia
Grosseto
Imperia
Isernia
L'Aquila
La Spezia
Latina
Lecce
Lecco
Livorno
Lodi
Lucca
Macerata
Mantua
Massa and Carrara
Matera
Medio Campidano
Messina
Milan
Modena
Monza and Brianza
Naples
Novara
Nuoro
Ogliastra
Olbia-Tempio
Oristano
Padua
Palermo
Parma
Pavia
Perugia
Pesaro and Urbino
Pescara
Piacenza
Pisa
Pistoia
Pordenone
Potenza
Prato
Ragusa
Ravenna
Reggio Calabria
Reggio Emilia
Rieti
Rimini
Rome
Rovigo
Salerno
Sassari
Savona
Siena
Sondrio
Syracuse
Taranto
Teramo
Terni
Trapani
Trento
Treviso
Trieste
Turin
Udine
Varese
Venice
Verbano-Cusio-Ossola
Vercelli
Verona
Vibo Valentia
Vicenza
Viterbo
State (Mexico)
Please select...
Aguascalientes
Baja California
Baja California Sur
Campeche
Chiapas
Chihuahua
Coahuila
Colima
Durango
Federal District
Guanajuato
Guerrero
Hidalgo
Jalisco
Mexico State
Michoacán
Morelos
Nayarit
Nuevo Leon
Oaxaca
Puebla
Queretaro
Quintana Roo
San Luis Potosi
Sinaloa
Sonora
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Veracruz
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Zacatecas
State (United States)
Please select...
Alabama
Alaska
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Arizona
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Armed Forces Americas
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California
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District of Columbia
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Rhode Island
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United States Minor Outlying Islands
US Virgin Islands
Utah
Vermont
Virginia
Washington
West Virginia
Wisconsin
Wyoming
Patient's age
Please select...
<18
18-35
36-64
65 or older
Gender
Please select...
Female
Male
Non-Binary
Prefer to self-describe
Self-description
Date of diagnosis (estimate if needed)
Where is or was the patient's tumor located?
Clival (skull base)
Upper cervical (C1-C2)
Lower cervical (C3-C7)
Thoracic
Lumbar
Upper sacral (S1-S3)
Lower sacral (S4 and below, including coccyx)
Which of the following best describes the patient's chordoma right now:
Patient has or had a local primary tumor, but no recurrence and no metastasis (tumor in other places)
Patient's primary tumor has been treated and has recurred in the same area
Patient's tumor has spread to other locations on the spine or other parts of the body, but can still be treated with surgery or radiation
Patient's tumor(s) can no longer be treated with surgery or radiation
Does the patient have:
Please select...
Local disease
Metastatic disease
Where has the tumor spread? (Select all that apply)
Other locations on spine
Other bones
Lung(s)
Liver
Skin
Soft tissue
Other areas
What treatments has the patient received?
Surgery
Radiation
Drug therapy
Clinical trial
Please tell us more about which drug therapy or clinical trial, and the patient's outcome.
Please share any other details about the patient or his/her treatment that you'd like us to know (dates of treatment, outcome, where treatments were received, etc.)
Side effects, quality of life, and survivorship needs
Which of the following would you like more information about (select all that apply)
Balance and/or mobility impairment (including vertigo or dizziness, weakness, loss of strength, frequent falls, tingling, numbness, or loss of function in limbs)
Bladder function
Bone fractures
Bowel function
Changes in vision (including double vision, loss of vision, strabismus, blurred vision, or loss of depth perception)
Difficulty with speech
Difficulty with swallowing
Emotional and mental health (including anxiety, accepting the "new normal", depression, connecting with others, etc.)
Facial pain
Facial paralysis
Fatigue
Headaches
Hearing loss or tinnitus (ringing in the ears)
Hormone imbalance
Nutrition
Pain
Sexual function
Sinus problems
Other (describe below)
Please share any additional details or questions you have about managing quality of life concerns, navigating survivorship needs, or dealing with side effects:
Terms and policies
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The Chordoma Foundation values your privacy and will not sell or share your information with any other organizations.
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